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PATIENT RESOURCES:

 

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PEER SUPPORT:

​NKF PEERS is a program where kidney patients, living donors, or care partners can connect over the phone with a trained mentor. Mentors are people who have been there themselves and can help others by sharing their experiences

​https://www.kidney.org/peers

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CRISIS AND SUPPORT HOTLINES:

Crisis and support hotlines can be a valuable resource for anyone experiencing emotional distress. The hotlines listed below are accessible from anywhere in the U.S., available 24/7, and free and confidential

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National Suicide Prevention Lifeline:

1-800-273-TALK (1-800-273-8255)

 Crisis Text Line: Text HOME to 741741

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Substance Abuse & Mental Health Services Administration (SAMHSA) National Helpline:

1-800-662-HELP (800-662-4357)

 

Veterans Crisis Line:

1-800-273-8255 (Press 1)

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PKD (Polycystic kidney disease) HOPE Line: 

Connect with our support team by dialing 844-PKD-HOPE (844-753-4673). Available Monday through Friday from 8 a.m. - 5 p.m. Central time to answer your questions and direct you to resources that will address your concerns.

https://connect.pkdcure.org/hope-line/

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SUPPORTIVE FORUMS

General Forum:

https://chronic-kidney-disease.net/forums

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kidney Transplant Community Forum:

https://healthunlocked.com/nkf-kidneytransplant#utm_source=nkf_webpage&ut

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Dialysis Community Forum:

https://healthunlocked.com/nkf-dialysis#utm_source=nkf_webpage&utm_medium=w

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Parent Forum For Children With Kidney Disease:

https://healthunlocked.com/nkf-parents

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​​​​​​COUNSELING & SUPPORT GROUPS

Medicare Beneficiary Counseling:

​This website connects you with low fee counseling services to reduce the psychological impact of renal failure and dialysis for Medicare beneficiaries

​https://bluemoonseniorcounseling.com/the-psychological-effects-of-kidney-disease/

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Support Groups By State:

https://aakp.org/center-for-patient-engagement-and-advocacy/support-groups/​​

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Behavioral Health Program at Rogosin:

Supportive services that provide mental health care to renal patients

https://rogosin.org/specialties/behavioral-health/

 

Information for Developing an Emotional Support Groups:

https://www.davita.com/education/ckd-life/support?p=1

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Support Groups in California:

https://www.kidney.org/newsletter/8-simple-practices-to-manage-kidney-disease-stress-and-mental-health​​​​​​​​

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